Adventures in Autism

by Peggy Meador

the “stern” look

belle and i have been working on why she feels the staff get frustrated with her and i drew her a chart that showed

belle :) + “yes” +”ok”= staff  :)

She seemed to respond well to that, but i also explained that the staff can also get frustrated about things unrelated to her and that if they ask her to do her work they are not always frustrated. Then we reviewed the nanny 911 concepts of communication and respect.

Hard concepts…… i wrote to her teachers to explain what Belle and I had talked about so we could send similar messages.

Her teacher wrote back:   Belle talked with me this morning about “stern” looks and what that means.  We explored that sometimes people don’t look happy or sad or angry while they are giving her time (ie: to engage in tasks, check her schedule, make a choice, etc.).  She ended up calling that the “blank” face.  it was a good discussion.

If that’s not communication and respect I don’t know what is.

April 26, 2009 Posted by peggy | ABA/PBS, school, strategies | , , | No Comments Yet

START-Statewide autism resources and training

If you live in Michigan START is going to be your best resource, as a parent, to get the services you need for your child.  Going to the workshops enabled me to gain the knowledge I needed to advocate for my child, work as a team with the school staff, provide the best placement possible for my daughter, understand what strategies work for kids with autism and why, and to stay hopeful that my daughter will live a full productive life.

go to their conference next week in Lansing!!

http://www.gvsu.edu/autismcenter/index.cfm?id=D0CEDF6A-ECB0-AB25-74D203B376AB0A22

START supports parents 100%!!!

April 23, 2009 Posted by peggy | START info learned and used, school | | No Comments Yet

Nanny 911

My daughter always amazes me by being attracted to TV shows that fill some of the academic, behavioral or language gaps in her life. She loved poko who taught her about sharing and feelings, She loves funniest home video when she needs to bridge the gap with family members and share a laugh. She learned how to read and greatly improve her vocabulary by watching between the lions religiously. And now she is really into nanny 911. It’s interesting that a child who is very rigid, has poor frustration tolerance and trouble seeing other’s perspective would love a show that shows just that in other children. She invites me to watch along and we discuss the feelings, facial expressions and communication abilities of the family members. She’s starting to see the recipe for success -rules, respect,+reinforcement, and communication. Belle went off to school this morning a little concerned about a problem she had with a staff member yesterday and we both agreed respect and communication is all that’s needed. She came home glowing!
Thanks nanny 911!

April 22, 2009 Posted by peggy | ABA/PBS, school, special interests | , , | No Comments Yet

reflective listening/theory of mind

belle struggles with people disagreeing with her when she complains about other students.

Her and I talk frequently about other people’s opinion, some theory of mind stuff about how others can feel differently than she does, how it feels for her when she thinks someone isn’t listening to her and how she can express that she’s not feeling listened to if someone gives their opinion instead of really listening to hers. she’s been watching nanny 911 and sees the nanny mediate between kids and their parents to help the kids express those types of feelings instead of acting out and then we have been practicing together.

It’s best to reflect what belle is saying  and try to avoid:

  • agreeing that the other student is grouchy or a problem (or “hates the world”?)
  • disagreeing that the other student is a problem and saying that “we love him, he’s so sweet”
  • ignoring belle (unless reflecting doesn’t help)
  • saying that she’s wrong or interpreting it wrong

Saying “it sounds like you feel____” or ” belle do you feel___?” or “sometimes it can seem like_____” or “is he always_____?”

and even asking belle if she’s feeling listened to and prompting her to ask to be listened to if not really helps!

***nanny 911 is also great for talking about how people with different facial expressions and in different situations might be feeling! she’s putting herself in other people’s shoes!

We even had a chance to talk about why she doesn’t like praise and how important it is to hear more good than bad from her teachers and that’s why they praise her so she should think about that when she hears it. We’ll keep working on that one!

April 17, 2009 Posted by peggy | asperger's syndrome, autism characteristics, maribel quotes/ perspective | | 1 Comment

Eustacia Cutler/ Temple Grandin

I’m reading Eustacia’s book A Thorn in my Pocket and love it! I see her speak this thursday and will let you know what she says, but for now get her book and read it. I loved chapters 7 and 8 especially. She’s so practical, intuative, passionate and loving. She was raising Temple during the dark ages for autism, but had and used many resources to help them both survive. A good lesson.

April 14, 2009 Posted by peggy | asperger's syndrome, books | | No Comments Yet

i should have thought of bugs before

Why didn’t i think to send dried edible bugs to school with my daughter before this!!?? It was a really fun way for her to connect with others at school, seeing who would eat the bugs and having lots of laughs about who tried but couldn’t. Where to get them? the specialty candy store or novelty shop- enjoy!

April 14, 2009 Posted by peggy | asperger's syndrome | | No Comments Yet

para meeting – this is the info that i thought was important to share

Family –Mom and Dad/adoption. Relationship with brothers/girlfriends, sitters. They are for fun, not “work”- outings, movies, museums, treats, shopping etc., but none of that would happen if belle wasn’t on her best behavior.

Behavior at home- happy, cooperative, polite. Doesn’t earn something for everything she does, but every privilege she has has been earned at some point. She does whatever I want her to do (but I try to make her think it’s her idea).

Words have a different meaning to belle- to us “ok” can mean “maybe, whatever, you’re crazy, ok, we’ll see, we will discuss it again later when you’re not so upset, or even no”, to her “ok” means “OK” that’s it.

Complaints- give me clues as to what she’s thinking and feeling, it’s my job to figure out what they mean ( I don’t take them at face value). I listen, not argue.

Theory of mind- can effect belle’s ability to cooperate, comply, show her work, accept praise, sensor her words, or consider the effect her words or actions have on others. She can’t put herself in your shoes, especially when she’s upset.

Presume- her love of learning, desire to get along, desire to cooperate, that she is a fun-loving kid. She is happy when everyone’s happy!

Consistency, rules, routine = happier Maribel

 

April 14, 2009 Posted by peggy | asperger's syndrome, autism characteristics, school | | No Comments Yet